It started with the Foglio family
Our story began in 2018 when our son, Ben, was diagnosed with Salla Disease. Established the same year, The Salla Treatment And Research Foundation (STAR) was founded to build a community around making a difference for patients with free sialic acid storage disorders (FSASD). Early in our journey, we were fortunate to be joined by kind and truly engaged doctors, leading researchers and donors.
Together, we have created something incredible with over 40 researchers joining the fight to find a therapy. STAR has become our guiding North Star and our life purpose. We hope you can join us in our bold mission.