The research consortium members.

Uniting world class Salla research

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Our Consortium

Trusted and endorsed by world-class researchers

The FSASD Consortium comprises approximately 40 researchers from leading institutions around the world dedicated to bringing new therapies to patients with free sialic acid disorders

How it works

Driving towards the first therapeutics for Salla Disease

The FSASD Consortium represents an innovative framework for harnessing scientific momentum globally around a rare disease that would otherwise remain neglected. Working under a blanked confidentiality agreement, the FSASD Consortium allows researchers to freely share latest developments in real time.  

This enables close collaboration between researchers with different areas of expertise, all with the express aim of driving forward FSASD scientific research and translational medicine.

A graphic explaining the structure of the FSASD consortium.

The dream team behind our initiative