The Salla Treatment and Research Foundation is a 501 (c) 3 tax-exempt charitable organization dedicated to supporting and advancing Salla disease treatments, research, education, awareness, and family networks.
STAR was established in 2018 by Ben Foglio’s parents, Jessica and Michael Foglio, to accelerate the prospects for effective medical treatments for those affected with free sialic acid storage disorders including Salla disease.
The Salla Treatment and Research Foundation is driven by an unwavering belief that no disease is too rare to fight, and that with sufficient support, hope, and faith, a small team of committed researchers, families, supporters, and advocates can create meaningful solutions for those impacted by this disease.
To find a cure since our children cannot afford to wait
So we can build a powerful global community of families, scientists, caregivers and donors
So we can do what is best for our patients without politics and hidden agendas
Because delivering on our plans and promises is all that matters
