Celebrating the incredible Salla kids and their families. These children, with their families by their side, embody courage in the face of this devastating neurodegenerative disease.
Read more about their personal journeys and how they find hope and joy every day.
STAR is partnering with RARE-X to build a data collection program for Salla families. When you participate in the Salla data collection program, you’ll help accelerate research and the development of new drugs, devices, and other therapies.
STAR has established a central resource of family and caregiver contact information to provide families with targeted information regarding FSASD patient community support, emerging research efforts, the proposed patients registry and treatment information.
