STAR has established a central resource of family and caregiver contact information to provide families with targeted information regarding FSASD patient community support, emerging research efforts, the proposed patients registry and treatment information.
STAR is partnering with RARE-X to build a data collection program for Salla families. When you participate in the Salla data collection program, you’ll help accelerate research and the development of new drugs, devices, and other therapies.
Please sign up below to receive further information on the FSASD Consortium. The Consortium, comprising worldwide academic clinical and scientific experts, provides a unique platform for collaboration, data sharing, andcollective problem-solving. Your involvement could make a significant impact on the lives of those affected by FSASD, and we invite you to join us in this crucial mission to enhance our understanding and treatment options for thisrare disorder.
STAR is dedicated to supporting those affected by these often-overlooked conditions, and we believe in the transformative power of volunteers like you. We are reaching out to individuals who are passionate about making a meaningful impact in the realm of rare diseases.
By joining our team, you have the opportunity to contribute to initiatives that raise awareness, provide support, and make a tangible difference in the lives of individuals and families navigating the challenges of rare diseases. Whether you have a few hours to spare or want to engage more deeply, your commitment can be a source of strength and resilience for those in need.
Together, let's build a community that advocates for change, fosters understanding, and offers a helping hand to those facing the unique struggles of rare diseases. Join us in our mission to make a lasting impact and create a brighter future.
