News

Announcing Our Newest Grant Awardees: Fueling Progress in Promising Therapies of Free Sialic Acid Storage Disorder (FSASD)
News

Announcing Our Newest Grant Awardees: Fueling Progress in Promising Therapies of Free Sialic Acid Storage Disorder (FSASD)

July 7, 2025
Care.com Presents: RARE A Community Event — A Day of Sunshine, Joy, and Impact
Event

Care.com Presents: RARE A Community Event — A Day of Sunshine, Joy, and Impact

July 3, 2025
Energy, Empathy & Everyday Balance: Highlights from Our First Two Family Seminars
Resource

Energy, Empathy & Everyday Balance: Highlights from Our First Two Family Seminars

June 18, 2025
New Name, Same Mission: We’re Officially the Salla Treatment and Research Foundation
News

New Name, Same Mission: We’re Officially the Salla Treatment and Research Foundation

June 16, 2025
Progress Report December 2024
Report

Progress Report December 2024

December 13, 2024
STAR Foundation receives prestigious Rare As One Grant from Chan Zuckerberg Initiative (CZI)
News

STAR Foundation receives prestigious Rare As One Grant from Chan Zuckerberg Initiative (CZI)

October 1, 2024
Progress Report June 2024
Report

Progress Report June 2024

June 25, 2024
Burke Energy presents: RARE
Event

Burke Energy presents: RARE

May 19, 2024
Unveiling the Stars: STAR Foundation shines bright at the World Symposium
Event

Unveiling the Stars: STAR Foundation shines bright at the World Symposium

January 31, 2024
STAR Foundation extends vital research partnership with NIH until 2025
News

STAR Foundation extends vital research partnership with NIH until 2025

January 8, 2024
Unraveling the Mysteries of SLC17A5
News

Unraveling the Mysteries of SLC17A5

September 1, 2023
Lighting the Way: The STAR Foundation Gala for Salla Disease
Event

Lighting the Way: The STAR Foundation Gala for Salla Disease

August 1, 2023
Pilot Natural History Study to Chart the Course of Disease
News

Pilot Natural History Study to Chart the Course of Disease

July 1, 2023
What is the FSASD consortium?
Resource

What is the FSASD consortium?

June 1, 2023
Progress Report 2022 - 2023
Report

Progress Report 2022 - 2023

January 1, 2022
Progress Report 2021
Report

Progress Report 2021

January 1, 2021
Progress Report 2020
Report

Progress Report 2020

January 1, 2020
Progress Report 2018 - 2019
Report

Progress Report 2018 - 2019

January 1, 2019