Salla Disease
Research
Research
Consortium
Community
Community
Our STARs
About us
News
Get Involved
Donate now
Donate now
News
News
Announcing Our Newest Grant Awardees: Fueling Progress in Promising Therapies of Free Sialic Acid Storage Disorder (FSASD)
July 7, 2025
Read more
Event
Care.com Presents: RARE A Community Event — A Day of Sunshine, Joy, and Impact
July 3, 2025
Read more
Resource
Energy, Empathy & Everyday Balance: Highlights from Our First Two Family Seminars
June 18, 2025
Read more
News
New Name, Same Mission: We’re Officially the Salla Treatment and Research Foundation
June 16, 2025
Read more
Report
Progress Report December 2024
December 13, 2024
Read more
News
STAR Foundation receives prestigious Rare As One Grant from Chan Zuckerberg Initiative (CZI)
October 1, 2024
Read more
Report
Progress Report June 2024
June 25, 2024
Read more
Event
Burke Energy presents: RARE
May 19, 2024
Read more
Event
Unveiling the Stars: STAR Foundation shines bright at the World Symposium
January 31, 2024
Read more
News
STAR Foundation extends vital research partnership with NIH until 2025
January 8, 2024
Read more
News
Unraveling the Mysteries of SLC17A5
September 1, 2023
Read more
Event
Lighting the Way: The STAR Foundation Gala for Salla Disease
August 1, 2023
Read more
News
Pilot Natural History Study to Chart the Course of Disease
July 1, 2023
Read more
Resource
What is the FSASD consortium?
June 1, 2023
Read more
Report
Progress Report 2022 - 2023
January 1, 2022
Read more
Report
Progress Report 2021
January 1, 2021
Read more
Report
Progress Report 2020
January 1, 2020
Read more
Report
Progress Report 2018 - 2019
January 1, 2019
Read more
Subscribe to our newsletter today
<p>I agree to receive mails from the STAR Foundation</p>
Thanks for joining our newsletter.
Oops! Something went wrong.
