Unveiling the Stars: STAR Foundation shines bright at the World Symposium

In just a few days, the STAR Foundation will take center stage at the prestigious World Symposium in San Diego, California

January 31, 2024

In just a few days, the STAR Foundation will take center stage at the prestigious World Symposium in San Diego, California, and the excitement is palpable. What started as a modest presence in the exhibition hall in 2019 has now transformed into a momentous occasion for the organization. This year, our very own Marya Sabir will be presenting groundbreaking work on Salla Disease conducted at the National Institutes of Health (NIH). It's a testament to the dedication and passion that fuels the STAR team in their mission to make a difference in the lives of those affected by rare diseases.

Marya Sabir's involvement in the world of rare diseases has not gone unnoticed. Last year, she earned the prestigious Young Investigator Award, a recognition of her outstanding contributions to the field. Marya's journey from a small table in an exhibition hall to the podium at the World Symposium showcases the tremendous strides the STAR Foundation has taken in advancing research and fostering a community of support.

For those eager to witness this milestone, the STAR Foundation extends an invitation to join the event via the provided link. It's an opportunity to be part of a significant moment in the quest for knowledge and treatment of Salla Disease. Marya's presentation promises to shed light on the latest developments and insights gained through the collaborative efforts with the NIH.

In addition to Marya's presentation, another beacon of the STAR community, Diane Hanson, a fellow Salla mom, will be attending the symposium. Diane's participation exemplifies the commitment of the STAR Foundation to not only support scientific research but also to strengthen family networks and education within the rare disease community.

Diane shares her plans to attend the session titled "The Patient Voice: Is Anyone Listening," scheduled from 4-6 pm on Sunday, February 4. This session underscores the importance of amplifying the voices of patients and their families in the pursuit of advancements in rare disease research and treatment. Diane extends an invitation to fellow attendees for a gathering, emphasizing the opportunity for the West Coast Salla contingent to connect and share experiences.

The STAR Foundation's commitment to building family relationships and fostering education remains at the forefront of their mission. The World Symposium serves as a platform not only for scientific discourse but also for the formation of connections that strengthen the rare disease community.

As we anticipate the upcoming World Symposium, the STAR Foundation invites all those passionate about rare diseases to join this momentous occasion. Together, let's celebrate the strides made, honor Mayra Sabir's remarkable achievements, and continue to champion the cause of Salla Disease and other rare conditions.


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